Learning to Live Inside of Loss

By Chantelle Daniel

I love books. I not only escape into them, but I learn from them, about life, cultures, love, loss. I don’t always know why I’m reading a book until after I’m done with it and even then, it can be some time before I am able to gain a full understanding of the experience.  A dear friend gave me the book, It’s OK That You’re NOT OK by Megan Devine. I liked the title, it felt like permission to be in the space that I am in, a space that is difficult to articulate, because often I still don’t believe the loss is real and I’m not OK. I didn’t read it right away, I left the book on my bedside table, letting those words seep in, like a mantra or a daily inspirational quote. “It’s OK That You’re NOT OK.” Finally, one day, I picked up the book and started to read it, realizing rather quickly that I wanted to have a pencil on hand so I could underline the passages that struck me.  I found myself underlining passage after passage, so much so, that at times I felt as though I were underlining more of the text than I was leaving blank.

I came to a line Megan wrote, “Grief is part of love. Love for life, love for self, love for others. What you are living, painful as it is, is love. And love is really hard. Excruciating at times.” I stopped. I had never heard the idea that grief could be connected to love, and yet it made complete sense.  I had always been taught that love was happy and beautiful, and yet I know from life that love has many different shades to it.  Megan explains that when someone we love dies, we continue to have the same deep feelings of affection for them.  The yearning and sorrow we experience at their absence, our grief, is a normal and natural extension of our love. I had also never heard love being described as really hard, even excruciating and yet in the context of grief, it certainly is.  That is what Megan does so well in this book, she speaks to the things I feel, but have never known how to put into words, or that I felt wrong or confused for experiencing. I admit it, I don’t know how to do grief. Megan tells me in her book that that’s OK. This book is written in a way that allows you to read at your own pace, you can jump around and find the chapters that speak to you best, read it straight through, or just have it on your bedside table reminding you that it’s OK to be where you are now.

“This book is about how to live inside of your loss. How you carry what cannot be fixed. How you survive.” That is what is so special to me about this book, Megan isn’t telling you to get over grief, she knows that isn’t how grief works.  Instead, she is helping you live with the loss, knowing you will always carry it with you, and guiding you towards finding tools to survive it. I don’t know how to survive grief yet, but I know reading books and talking about books has helped me in most other areas of my life.  Regardless of whether you have read the book cover to cover, jumped around to read certain sections, or just have the book on your nightstand; I invite you to come help us talk about the book, It’s OK That You’re NOT OK by Megan Devine on April 14th from 5:30-7:00 p.m.  Underline a passage or two that speaks to you, or simply come to be in the same space as others who are navigating grief. I look forward to connecting with you.

Wintering and Cold Water Swimming: An Exploration in Radical Self Care During the Pandemic

by Laura Ward, LMFT, CT

“When it’s really cold, the snow makes a lovely noise underfoot, and it’s like the air is full of stars.”

Katherine May

The water is completely still under a brilliant sky, layers of light beneath a canopy of dark clouds. The moon shone brightly above us.  Walking into the lake, I admire the tiny shards of shell glittering on the rocks below, each shard clear and defined in the calm water. As we swim, I can feel the cold reaching all the way to my center, reminding me to just be, to breathe deep. Walking away, I carry the lake within me, calm and shimmering.

I wrote this reflection after completing my second cold water swim in Cayuga lake with my co-worker Sara Worden, Assistant Director of Community Engagement.  Cold water swimming has been shown to have numerous physical and mental health benefits and many people engage in the practice regularly. 

I became interested in this practice after reading the book Wintering: The Power of Rest and Retreat During Difficult Times by Katherine May, which is the book featured in our upcoming community book discussion. 

In the chapter “Cold Water Swimming”, Katherine talks about the mental health benefits and comradery of cold water swimming. Many people are using cold water swimming to help them cope with the many losses experienced during the pandemic. It’s a safe activity that can help swimmers feel connected to the healing powers of nature and other humans.

Book Discussion: March 4th with Laura Ward via Zoom. Register here.

Then, while talking with Sara, I discovered that she had had just booked American ice, open water and endurance swimmer, Jaimie Monahan, to speak at an upcoming event for the Women Swimmin’ community.  After marveling at the coincidence of our shared interest and the intersection of our upcoming events, we decided to give cold water swimming a try for ourselves and committed to six swims over a two-week period. 

Virtual Presentation: March 18 via Zoom. Register here.

It has been an exhilarating experience and one that has reminded me that I need to continue to stretch out of my comfort zone and look for new ways to stay healthy and care for myself as we approach the year mark of the pandemic and social distancing. To many, this might sound like a rather extreme example of self-care and I agree. 

However, we invite you to join us in reflecting on what you might need to keep going during these challenging times.  We hope that you will be inspired by Katherine May or Jaimie Monahan as you contemplate how to answer this question for yourself.

Hospicare Announces New Executive Director

The Board of Directors of Hospicare & Palliative Care Services is pleased to announce the successful hiring of its 8th Executive Director. Joe Sammons will join the Hospicare team in February. 

“We’re thrilled that Joe has agreed to join Hospicare as our new Executive Director,” said Betsy East, president of the Board of Directors. “Joe has valuable experience leading organizations in the health care arena, is committed to the Hospicare mission, and is a compassionate, strategic and thoughtful leader. We’re looking forward to working together with him and Hospicare’s incredible and dedicated staff and volunteers as we work to provide end-of-life and palliative care to members of our communities.” 

Sammons currently serves as the Executive Director of Challenge Workforce Solutions, the largest provider of training, vocational services and employment for people with disabilities and barriers in Tompkins County. Prior to joining Challenge in 2015, Sammons served as the President and CEO of Planned Parenthood of the Southern Finger Lakes, creating and completing a capital campaign of over $8 million while building new health centers in Hornell, Corning and Ithaca. Under Sammons’ leadership, the agency also implemented electronic medical records while dramatically expanding its education and community outreach programs. 

Sammons has also served as Executive Director of the Geiger-Gibson Community Health Center in Boston and as Assistant VP of Operations for Community Healthcare Network in New York City. Locally, he is involved with several groups, including the Tompkins County Human Services Coalition, the Tompkins County Chamber of Commerce, the Tompkins County Workforce Development Board, and Ithaca Rotary. 

Sammons and his family live in Ithaca. “I am deeply honored to be invited to lead Hospicare – I am simply in awe of the compassionate, high quality care the agency provides to people in our community, regardless of income or insurance.” said Sammons. “Throughout my career, I’ve been truly blessed to do good work for good people – a description that fits Hospicare really well.  I can’t wait to get started!” 

Sammons succeeds Kimberly De Rosa, who served as Executive Director for Hospicare until September 2020. Joe Mareane, former administrator for Tompkins County, has served as interim Executive Director. 

Hospicare & Palliative Care Services serves residents of Cortland and Tompkins counties. Our hospice team cares for patients’ medical, emotional and spiritual needs so they can more fully enjoy time with loved ones. Our palliative care team cares for people with life-limiting illnesses by relieving the burden of illness, enhancing the quality of life, and fulfilling the patient’s goals for comfort. Finally, we provide bereavement support services to anyone in our service area who is grieving the death of a loved one, whether or not they died on hospice. 

Anyone interested in learning more about our services and programs can call 607-272-0212 during our administrative business hours (M-F, 8:30am-4:30pm). 

A Report of our Work in Cortland and Tompkins Counties

As we turn the final pages of 2020, our thoughts go to all who have struggled with loss. Whether you mourn the death of a beloved friend or family member – or simply the loss of normalcy — this has been a hard year for so many of us.

At Hospicare, we celebrate the nurses, aides, counselors, social workers, and staff who have tended to those whose end-of-life needs and grief did not take a pause for COVID. They donned masks and gloves and gowns, mastered new technologies and techniques to maintain human connections at a distance, and selflessly braved risks to themselves in order to help a person or family in need. 

The good work undertaken by these extraordinary people could not have happened without donor support. Even in less challenging times, nearly one-fifth of Hospicare’s budget is supported with funds given by a generous community—not for frills, but as a means to provide the level of care, dignity, and comfort that has been the hallmark of our agency for over 36 years. 

When you give, you inspire others to give as well, be those gifts of time, talent or treasure. Together, we are creating a community that we can be proud to call home.

To our donors, we say a special thank you. Thanks to our commitment to patient care and our rich community connections, we stretch every donated dollar as far as it can go.  As Helen Keller once said, “Alone we can do so little; together we can do so much.”

On behalf of all the patients and families we serve, and on behalf of Hospicare’s staff who have not let the challenges of 2020 get in the way, we offer our thanks and gratitude. You make a difference, and our online report is how it shows.

Safe and happy holidays to you and yours,
Joe Mareane
Hospicare Interim Executive Director

Winter Solace Community Memorial

Although we could not be together in person, our virtual memorial on December 6th was incredibly moving and we thank everyone who participated, either by attending or by sending in names of loved ones.
 

For the first part of the memorial we took advantage of Zoom technology and broke out into small groups for intimate conversations in breakout room. We were honored that so many people choose to open up and share both their joy and sorrows.  We offered tips on how to cope with the upcoming holidays and participants shared stories of how we are choosing to remember our loved ones this year.

We’ve created a short video for those who weren’t able to join us.  Please enjoy our memorial video which features the wonderful music of Travis Knapp and a slideshow memorializing the community’s loved ones.

Always remember, Hospicare is here for you. The holidays are not going to be the same this year but know that you are in our thoughts. May peace and grace find you in the New Year.  

Support through the Seasons

Tools for Navigating Grief and the Holidays during COVID

At this point it’s clear, the pandemic will change many of the ways in which we celebrate the upcoming holiday season. We usually associate the holidays with being “joyful” or “merry,” gathering with family and friends, giving gifts, and engaging in festivities and traditions. This year we will need to consider how our celebrations will need to change in order to keep ourselves and our friends, family, and community safe.  

We will naturally feel some grief as we reassess what parts of the holiday we can still create and what aspects we will need to modify significantly or discard all together.  Grief can manifest in many ways, and it’s important to acknowledge its impact on our physical and emotional health as the holidays progress.

Hospicare is providing support to the community at this unusual time. Programs are free and all are welcome! To RSVP for programs or for questions call 607-272-0212 or email events@hospicare.org.  Held online via Zoom. Login details will be provided after registration. Register for programs at least 2 days before event.

Winter Solace Community Memorial: Sunday, December 6. Join us at 7pm for fellowship and conversation and stay for a memorial service. Or come at 7:30pm for the program of remembrance. All in our community who are grieving, regardless of whether your loved one died on Hospicare’s services, are welcome to stop by for a time of remembrance during the busy holiday season.

Coping with the Holidays: Wednesday, December 9, 5:30-7pm. Holiday time can be especially difficult after the death of a loved one. Learn about ways to take care of yourself and honor your feelings as we head into the holiday season. Includes a presentation followed by a discussion and support group.

Yoga for Grief: Thursday, January 7, 5-6:15pm. Start the new year with self-care! Enjoy a gentle and peaceful yoga practice with Jody Kessler. No experience necessary.

Hospicare & Palliative Care Services is hiring a chief executive.

Hospicare & Palliative Care Services seeks a dynamic Executive Director to lead our respected, vibrant agency. We bring together medical expertise, compassion, and outstanding care for those dealing with life-threatening illnesses. Located in New York’s scenic Finger Lakes region and renowned for our area educational institutions, Hospicare serves the residents of Cortland (pop. 50,000) and Tompkins (pop. 100,000) counties.

The agency has a $5 million operating budget, serving more than 500 patients and their families annually through hospice, palliative care, and bereavement services in patients’ homes, in our 6-bed residential facility, and in partnering acute-care and extended-care facilities. The Executive Director works alongside a deeply committed staff (50 FTEs), engaged board, passionate donor community, and volunteer network of 600 people.

The successful candidate must have strong communication skills; promote a culture of collaboration, teamwork, and open communication; possess financial and business expertise; and demonstrate success in outreach and fundraising.

Send resume and cover letter to ExecutiveSearch@hospicare.org. Applications will be accepted until the position is filled.

Find more information about this opportunity and download the job description here.

Hospicare welcomes Joe Mareane as interim Executive Director!

Joe Mareane, a Hospicare Board Member and vice president, is stepping in after the resignation of Kim De Rosa in September.  A national search to fill the Executive Director position will commence shortly.

“I am looking forward to working with an organization I’ve come to greatly admire from the perspective of a community member, board officer, and family member of one whose passing was eased by a remarkable team of Hospicare nurses and staff,” said Joe. “I spent a long career in local government, including nine years as Tompkins County Administrator, before retiring a couple of years ago.  I’m hoping the skills I learned along the way—to be a good listener, careful thinker, and collaborative manager—will contribute to a smooth transition to a new Director.”

Joe Mareane retired in 2017 as Tompkins County Administrator.  During his tenure, he served as the chief executive officer of the 700-person, $170 million organization.  His retirement came after a 35-year career in local government that included serving as Onondaga County’s Chief Fiscal Officer, where he managed a $1.2 billion budget, and earlier as Assessment Commissioner, Director of Management and Budget, and Director of Development for the City of Syracuse.   He was also involved in the development of the Palisades Center mall in Nyack, New York as an executive with the Pyramid Companies and served as a Vice President of the Greater Syracuse Chamber of Commerce.

“While executive changes are inevitable in every job sector, what will never waiver is Hospicare’s commitment to its patients and families,” said Hospicare Board of Directors president Betsy East. “The Board is confident in our exceptional senior leadership team and their ability to navigate this transition, as well as the dedicated and compassionate staff who provide extraordinary care to all who need it.”

Joe currently serves on the Boards of Challenge Workforce Solution, the Human Services Coalition, and as a member of the New York State Indigent Legal Services Board.  He holds a Master’s degree in Public Administration from the Maxwell School of Citizenship and Public Affairs at Syracuse University and a Bachelor of Arts degree from Indiana University-Purdue University at Fort Wayne. Joe and his wife Amy have been married for 45 years and have three grown children. 

Hospicare & Palliative Care Services provides palliative care, hospice care and grief support to all residents of Cortland and Tompkins counties. Care is provided to patients in private homes, in nursing facilities, in hospitals, and at Hospicare’s 6-bed residence on Ithaca’s South Hill.