The Beauty of What Remains

By Rebecca Schillenback

What is left when someone we love has gone from our sight?  What remains when a beloved person has died?  What will be left of us, after we are gone?  Can beauty be found in what remains?

In his book The Beauty of What Remains, Rabbi Steve Leder offers a gentle meditation upon these questions.  Drawing from the lessons he has gleaned from his years as the senior rabbi of one of the largest synagogues in the world, Leder’s many miles spent walking with people ‘through the valley of the shadow of death’ have led him to understand that it is actually death that can show us how to live and love more deeply.  With great compassion, Leder approaches the loss and grief that visit us because of death, and asks us to consider what gifts and opportunities might also be found there. 

Of course, it’s so understandable to wish for a life without the losses and griefs of death.  But Leder suggests that if such a wish were granted, while we could gain time and safety to a degree that is almost incomprehensible, we would also paradoxically lose something urgent and precious that defines our very humanity and propels us to love.   In the end, Leder proposes that it is precisely the urgency of love, and the preciousness of what and who we love about living, that are an indelible quality of being human, and of the beauty of what remains when death has taken someone we love from us.

All of the great spiritual traditions wrestle with the reality of our human finitude, and give voice to our many responses to the given-ness of our mortal condition.  Many stories, songs, poems, faiths, philosophies, hypotheses, and cosmologies have been crafted by our spiritual ancestors and by our contemporaries, through the millennia and modernity, to grapple with our shared condition.  Steve Leder’s book is another lovely offering in this long tradition.  Please join us as we explore this gentle book, and use Leder’s reflections as our guide for creating and connecting with ‘the beauty of what remains.’  

Book Discussion: The Beauty of What Remains, by Steve Leder

This event will include an interactive discussion of the book, The Beauty of What Remains.  Rebecca Schillenback will lead us through an exploration of spirituality, grief and what can be learned from this book. Held via Zoom. Registration is required by September 20th. For more information contact the Bereavement staff via phone at 607-272-0212 or send an email. Login details will be provided after registration.

The Nature Conservancy Reports on Women Swimmin’ for Hospicare

Swimmin’ to a Clean Water Future in the Finger Lakes

By Liz Galst, Communications Manager, New York Marketing and Communications

Phosphorous and nitrogen pollution pose a threat to the region’s water quality. Here’s what we’re doing to help—and how you can take part.

The health of the lake has a big impact on the health of our organization and our ability to deliver services.

SARA WORDEN
Hospicare Acting Director of Development and Community Relations

Welcome to our New Board Members

Hospicare is pleased to announce that three new members have joined our board of directors.  Please join us in welcoming Aloja Aierewele, Jerry Dietz, and Laurie Mante!

“Of all the ways that community members give to Hospicare, the gift of time is perhaps the most selfless,” said Executive Director Joe Sammons. “We are so grateful that Aloja, Jerry and Laurie have decided to offer their time, skills, and expertise to our organization’s mission of providing compassionate care to Cortland and Tompkins counties. Together, we are Hospicare — and we are so fortunate to welcome three new board members who demonstrate such care and commitment to the spirit and mission of Hospicare.”

Left to right: Laurie Mante, Aloja Aierewele, Jerry Dietz

Laurie Mante is the executive director of Kendal at Ithaca. She came to the Ithaca area in 2019 after spending 28 years in various leadership positions in aging services in the Albany, New York area. Laurie’s professional experience includes numerous roles with nursing homes, assisted living, and adult day services, as well as four years as the executive director of the community hospice. Laurie has a passion for quality hospice and palliative care services that are rooted in personal and professional experiences. Laurie lives in Lansing with her husband Tom and daughter Mary Kate.

Aloja Aiereweleis is a human service professional with a medical background. Trained in pastoral ministry, Aloja has worked with nonprofit organizations for 15 years to help individuals and families live stable and productive lives. He is currently the Energy Warriors program coordinator at Cornell Cooperative Extension. Aloja is the recipient of the Jane Y. Hartz Outstanding Human Service Worker Award, which honors a frontline worker whose dedicated efforts make a real and measurable difference in the everyday health and wellbeing of the people served.

Jerry Dietz graduated from Ithaca College in 1975.  He has owned and operated CSP Management, a real estate management firm in Ithaca, since 1990.  Prior to that, Jerry was the owner-chef of two restaurants in Ithaca, Ragmann’s and The Other Side.

Jerry has enjoyed serving on the boards of numerous local, mission-based organizations. Most recently, he served for two years as board president at the Cancer Resource Center. He also served as a board member and past board chair for the Tompkins County Chamber of Commerce, and served on the advisory board for the Friends of Ithaca College. He is active with the local synagogue, Temple Beth-El, where he has been the long-time house chair and is a past president.

Jerry married his wife, Margaret, in 2017.  As part of the lead-up to their wedding ceremony, they held a day of service at Hospicare in which family and friends spent a day painting and cleaning up the grounds at the residence.  Because of that event, they became aware of a Hospicare “wish list” item to have a gazebo constructed on the grounds. In 2018, with the help and generosity of family and many friends in the community, they were delighted to make that wish a reality.  In October of 2018, they dedicated the newly constructed gazebo in memory of Margaret’s mother, Mary Overslaugh, who received care at the Hospicare residence in the final three months of her life.

To view the complete list of board members, visit our website: https://www.hospicare.org/why-hospicare/about-us/meet-the-staff/

Collaboration between Hospicare and Cancer Resource Center of the Finger Lakes

Hospicare & Palliative Care Services and the Cancer Resource Center of the Finger Lakes (CRCFL) both share a common goal to be accessible to diverse populations throughout our community. CRCFL supports people living with and affected by cancer and Hospicare provides end-of-life care and grief support. Both are nonprofits serving several counties in central New York. 

Throughout the year, we’ve connected faith leaders with our resources through programming such as webinars, and promotional outreach via digital and print materials. Perhaps most valuable, are the two Community Conversations that we hosted with faith leaders. Our goals were to listen to the needs of the faith leaders and to help bridge the gap between faith and healthcare. 

“Hospicare is proud to be a part of the ecosystem of organizations committed to a better, more just world, from health care to human services to the arts to the environment and so many more.  That ecosystem – so vital to our survival as a people and as a planet — is strengthened when organizations collaborate” said Joe Sammons, Executive Director of Hospicare.

Kim Pugliese, Executive Director of the Cancer Resource Center of the Finger Lakes (CRCFL) and Joe Sammons, Executive Director of Hospicare & Palliative Care Services in the CRCFL Healing Garden.

Our organizations were fortunate to have Aleah Thomas, Diversity and Inclusion Programming Assistant at CRCFL leading the project. Aleah provided the glue that we needed to keep momentum through the year. 

“I am so grateful for this opportunity to collaborate with Hospicare’ said Aleah. “It has been so rewarding to work together to achieve the same goal of reaching underserved communities.”

Together through this partnership, we have reached out to dozens of faith communities throughout Tompkins and Cortland Counties and we look forward to these relationships deepening. 

Kim Pugliese, Executive Director of CRCFL said “We are so grateful to both Aleah and Hopsicare for the opportunity to collaborate on this outreach project. The opportunity to be more inclusive and reach populations who wouldn’t traditionally think to connect with us for support is invaluable. I know from personal experience how hearing “you have cancer” can make the floor drop out from under you.  We want to make sure that NO ONE faces cancer alone….and that everyone can have access to resources to make that journey less overwhelming or isolating.”

It is our hope that these initiatives are only the beginning of a long lasting relationship between our organizations and communities of faith.

An Introduction to Hospicare and the Cancer Resource Center of the Finger Lakes with Kim Pugliese and Joe Sammons.

We would love to share more information with you and your congregants! We are happy to speak briefly during your in-person or virtual services during your announcements period. If live engagement is not feasible at this time, we are happy to send brochures for your bulletin or send digital materials to include in your e-newsletter. If you would like us to connect with your organization, please contact us. 

For more information on our organizations you may visit crcfl.net and hospicare.org. Our teams are ready to serve you!

Meditative Swims for those we have Lost

(A Women Swimmin’ Participant Profile)

by Erica Steinhagen

“I swim in meditation to those I and others have lost.”

I had decided not to bring my neoprene sleeves. It seemed so warm to me. Even at 8am, it was getting humid, and I didn’t even deign to look at the Cayuga Lake temperature abstract that I so faithfully refreshed each winter dip in order to record the audacity of our character on those bitter days. Today was a miler, and I was so eager to get in, I only made sure to have my sleeveless wetsuit for buoyancy, cap, goggles, Garmin, bright pink buoy… When I arrived at East Shore, I checked. 63 degrees. Hm, ok. I forgot my water shoes, too. Ah, well. I rushed in like always and pushed my face into the water and instantly bucked up and made that hooty reflex-sound like “WHOOF” and then eased back in, letting my face and neck get acclimated as I started the crawl. The water was so still it looked like a pool, but it was earthy and silty and the weeds were starting to reach the surface like they do in mid-June. The cold on my  bare arms made me almost smile, remembering the millions of needles of 32-degree water in February. This was easy. Exhilarating. Here we go. Whoosh. Quiet. And loud. Water in my ears. I’m alone.  

Every single time, it happens. I am distracted by the starting, by the challenge to my comfort, the settling into a rhythm. But then, once I’m settled and in a pattern of right/left/rightbreathe, left/right/leftbreathe, I start to feel a little tightness in my throat. All of a sudden, I hear Carol telling my how when I’m 40, my voice will do that too…I’ll find my lower range, I’ll sing that role, don’t worry, it settles. The laugh, the tease, the big sister squeeze when we part after the gig. I am sitting with Camilla, on the end of her sofa, and she’s got a tiny smile and is much too pale, and she’s telling us how she dreamed us before we were born, the three girls with blonde, brunette, and red hair, she called us the Princesses and we each had a pony to ride that matched our hair, and she drew us, and knew us when we finally met. And then my Kel, at the end, unable to speak, but rolling her eyes with a joke, and squeezing my hand so tight, and letting me rub lotion on her bald head and the sound of her breath the last time I was with her.  

In the water they’re sort of above me and behind me, these women, because in front of me is just green. Foggy green. Flash of sun. Foggy green. Flash of land. Breathe. Sip. Settle the breath. Calm the tight throat. Get it together. I am here because I CAN be. I can still move my body. On land I am now clumsy, less coordinated and strong and confident than before my foot dropped from nerves being crushed by an exploding disc in my spine. I limp on land. I am no longer a fast walker, a source of great pride, especially when I lived in NYC. Not now. I am slow, awkward. In the lake, I am buoyant. I am not fast, but I am confident. I can set my face in the water like the sun is set with some insistence and firmness into the morning sky. Not high, but purposeful at 8:30am. Me too, I say to myself. To the sun. To my women. Me too. I am insistent. I will move because I can move. I am still here.  

Somewhere is my sister, too. She’s quieter. But to be frank, death is all around me. And it is a part of this meditation. Every time. That I have had so many lost to me who were gathered so closely in my net. That is why. That is why I am in the water. Because there is nothing to be done about loss. It has happened, it will continue to happen, we are all plummeting towards it every moment. But one thing I can do is swim. I can swim to raise money for Hospicare. Easy. And hard. I want it to be hard. Two miles. More. Let’s go. I can do it. I am here. I can move. 

I am so grateful to Hospicare for helping us witness and be present for deeply loved ones who are dying. I am so grateful for the support, and resources, and care that allow for the…what? The transition, the guidance towards what is next. The resting of a forehead to a forehead, saying words that might be the last ones. Say them every time in case they are. Then they are. That is all.  I love you, I will always be here, I will be ok, I will take care of her/him/them, always, it’s ok, you can let go, you can rest, I’ll be with you, I am with you, I love you.  

Swimmin’ for My Mom

By Casey Carr

We brought my 95-year-old mother home to live with us at the start of the COVID-19 pandemic so we could safely give her the loving care that she deserved. Although the first nine months were filled with lovely meals together, fun family card games, holiday celebrations and bonding time with my two sons; my mother’s health began to rapidly decline after she suffered a fall. This decline necessitated a hospital bed, Hoyer lift, and an enormous amount of emotional, medical, and physical caregiving. Due to COVID-19, placing my mother in a nursing home was out of the question. 

Casey Carr (left); Casey’s mom – Helene Carr (middle); Casey’s sister – Jayne Weeks (right) 

Hospicare to the rescue! I cannot begin to tell you how Hospicare made it possible for me to care for my mom at home and stay in balance at the same time. The emotional and informational support from the Hospicare social worker was phenomenal. She really cared about me, my mom and my family and made this difficult transition do-able. She helped me find and use every resource Tompkins County has to offer. 

Weekly visits from Hospicare’s nursing staff taught us how to care for and love someone while they are leaving us. They helped with everything from stress management techniques and medical intervention to changes in nourishment, toileting and mobility. They answered every concern and question no matter how odd or uncomfortable. Most of all, the nurse who visited weekly and more during the last few weeks of my mother’s life helped us understand what we could expect and how to respond in a medically knowledgeable and loving way. Please support Hospicare so they can provide this immeasurable resource to others.  

The home health aide that Hospicare provided gave me much needed respite to take care of other things in my own life that kept calling to me. The spiritual advisor checked in every week to ensure my mom and I had someone to process the changes happening during this challenging time.  

And they did all of this for no charge to us at all! And so, I swim for Hospicare to give back so Hospicare might be able to help others enjoy and care for their loved ones at home during the last weeks or months they are with us. Please help me by donating what you can to Hospicare and Palliative Care Services. 

The Night You Died – a love story, a poet, and her legacy

By Jen Gabriel

It was a sunny spring afternoon and an unassuming envelope arrived in Hospicare’s mailbox. Inside, a generous check and a single piece of paper. 

“To whom it may concern,” the letter began. “Enclosed please find my final donation. I have a terminal illness and will not be further donating to any organizations. Sincerely, Joyce McAlllister.” 

Joyce’s friend and caregiver, Erin Quinn, said that this effort was Joyce’s way of saying goodbye to the dozens of nonprofit organizations she had supported. 

“Joyce had a soft spot in her heart for nonprofits of all kinds,” Erin explained. “She made small gifts to them her whole life, and when it came time to prepare for her death, she wanted to be sure that her favorite charities knew why her giving would soon stop.” 

In addition to supporting Hospicare and a handful of other local organizations, Joyce made gifts to many animal rescue organizations. 

“Joyce always said, ‘everyone always cares about the elephants and the big cats, but no one ever thinks about the donkeys’,” Erin said, with a chuckle. “She loved her donkeys.” 

Born in Ithaca in 1931, Joyce and her family lived on dairy farms in Groton, and later in Dryden. She graduated with an Ithaca College degree in drama, left the area to live in New York City for a few years, and returned to the Ithaca-area in 1960. It was then that Joyce began a 30-year career at Cornell University.   

Joyce’s strong connection and affinity for Hospicare began in 2004, when the agency cared for her husband John, first at home, and then at the residence.  

“Hospicare did everything right by Joyce,” Erin said. “She felt so supported and cared for, and that meant everything to her.” 

After she retired, Joyce turned to poetry writing. She published her first book of poems at the age of 85.  In fact, it was her 2004 experience with Hospicare that inspired her poem, “The Night You Died.” The poem expresses Joyce’s gratitude for the Hospicare nurse who had sung her husband’s favorite Irish tune with him in the moments before he died. 

A copy of that special poem is below. Joyce’s third book of poetry, published posthumously, will be available for purchase later this year.  

The Night You Died 

Afterwards, they told me  
how you sang your way 
to death, head raised high  
to catch your ever-thinning  
breath, singing melodies you  
learned in youth, forming  
words you watched parade  
across closed lids. 

The Night Pat Murphy Died  
sounded from your bed,  
moved out the door, down  
the hall; your soul followed  
with a will, anxious now to  
find that spot of green you  
knew from birth was yours  
to claim. 

They said your voice was  
resolute and unafraid,  
an Irish tenor making  
song to spend the leap  
from finished life to  
timeless death. Beside a  
stone in County Cork,  
ancestors perched  
and waited.  

Illuminations 2021

At Hospicare we provide palliative care, hospice and grief support to all residents of Cortland and Tompkins counties. 

Illuminations, our annual community memorial, is a part of the fabric of our community, allowing us to honor and remember loved ones who have died.  Every year, we offer this memorial service as a way for the community to come together and grieve our losses.  

Due to Covid, it was a hybrid event this year. A small group of our staff was able to hold the ceremony in the Hospicare gardens – the ceremony was livestreamed for guests via Zoom. 

On Thursday, June 10, we lit luminaries across Hospicare’s grounds, each light representing the loved ones we remembered and celebrated for the contributions they made to our lives. The ritual was presented by members of our incredible staff: Joe Sammons (executive director), Edna Brown (social worker), Rebecca Schillenbeck (spiritual care provider), and Rachel Fender (social worker). We honored the parents, children, siblings, grandparents, family members and friends who helped shape us and our worlds.  

Watch the recording of Illuminations and create a ritual of remembrance for your loved one.

In closing, Rachel Fender shared a poem that captures the beauty and power of collective healing. It is titled “If the trees can keep dancing, so can I” and is an adaptation of a poem written by Nancy Cross Dunham.

What I’m learning about grief
is that it sits in the space between laughs
comes in the dark steals the warmth from the bed covers threads sleep with thin tendrils
is a hauntingly familiar song,
yet I can’t remember the words…

The poem was collectively written, crowdsourced by over 30 people living across the United States and internationally. You can read the crowdsourced version here and the original here.  

Please reach out if you need additional support for processing your grief check out our grief support resources here.

Artwork for our 18th Women Swimmin’ for Hospicare!

Each year a local artist creates a custom design for the event t-shirts for Women Swimmin’ for Hospicare. We are incredibly pleased with the amazing work that Lisa Cowden did for the 2021 event. The design is a paper cut out and really captures the spirit of our Go the Distance event. Read more about her background and connection to hospice below.

An Artist Perspective By Lisa Cowden

The Finger Lakes region has been my home for more than 40 years, and if there has been a constant while I’ve lived here it is the enduring beauty of the landscape graced by the transformation of the seasons. I live in the woods, and my studio overlooks an old meander of a creek that goes over Taughannock Falls, and is visited every spring by optimistic wood ducks and the occasional stern heron; it’s a meditative space and suits me well.

No matter how often and how far I ventured out to find work as an illustrator and designer whether it happened to be for Cornell, Corning, or the New York Times, or I was creating my own body of work for an exhibition, the fulfilling and inspiring solitude of nature has always been right outside my window and this room has seen many an ebb and flow of all kinds of projects.

I went to Berkeley. I traveled. I became a certified Montessori teacher, raised goats, children, eventually got an MFA from Syracuse University in surface pattern design, and wrote and illustrated two cookbooks.

Much, if not all of that, is behind me; but I’m still ruining fancy scissors by using them to cut paper and I keep making stuff because it turns out artists don’t retire.

And if I look outside now, I can see that the skunk cabbage is in its glory and the maple leaves are just beginning to unfurl.

I am so happy to have been asked to make the artwork for Women Swimmin’ for Hospicare 2021. When my mother was dying and my brother and I were desperate for support and guidance, we could not have navigated the situation as well as we did without help. It was a long time ago, and in California, but I still remember someone from hospice calling me a year after my mother passed away to see how I was doing. I’m still grateful for that.

Regaining Well-Being Through Forgiveness

by Mara Alper

We are all faced with the question of whether or not to forgive many times in our lives.

Each time it is challenging. Yet there are ways of seeing it that simplify the question. Forgiveness is a choice that allows us to heal on our own, without the offender apologizing or even acknowledging their part.  Forgiving in this way is for the benefit of the person who forgives, not for the wrongdoer. It does not mean what the other did was all right.

We can also choose to forgive ourselves; sometimes this can be even harder than forgiving another. In our culture, we often hear the phrase, “Forgive and forget.” But it isn’t about forgetting. It is about regaining the energy tied up in anger and hurt about past stories, and using it for far better purposes.

When we lose a parent, a loved one, faith in someone else or ourselves, we become vulnerable in a way that feels exposed beyond endurance. To protect ourselves, we may harden into anger or explode with blame, as we attempt to restore our sense of safety.  Deep hurt may propel us to say or feel, “I can never forgive you” or “I can never forgive myself.”

We may become fixed in that moment of time. We create a story about our grievance and repeat it to others and ourselves. Our outward lives continue, but our anger and hurt tie us to that point of pain and it lives on, consuming our life energy in ways we barely realize, until one day if we’re lucky, we may wake up and say — enough, this exhausts me.

I came to this place several times in my life. The first time, I faced difficult childhood recollections and over time began to understand the value of forgiveness. Each time after that allowed me to experience how forgiving helped me in ways I did not imagine possible. The turning point each time was the realization that my anger and hurt kept me completely connected to the one I was angry at, that I could not move on while I was caught in these feelings. I inadvertently learned about forgiveness because of my life circumstances and unwillingness to let the past deflate my life energy any longer.

I choose to tell my stories publicly so that others will have the courage to tell theirs. Stories can heal us. My healing process included making documentaries about my journey. These stories were heard by thousands of people around the world and helped them heal.

We tell ourselves repetitive stories about how things were and stay locked in these tales. Yet, shifting the story to consider other possibilities, new ways to see the situation, has positive effects in a short time. Our eyes are opened, our hearts softened. We can move on from a place of depletion toward renewed energy.

When I work with people about forgiveness, I ask them to write down their story the way they tell it to others. We tend to develop a few set sentences or paragraphs that tell our tale. In the workshops, we write our usual story, and then distill it into a few brief sentences and say them aloud to someone else. They listen carefully and repeat it back to us as they heard it and felt it. We hear it in a new way. A shift begins.

Hearing our own story in a neutral way, hearing the compassion someone else feels for our story, softens us toward our self. We feel tenderness for ourselves as if the story were someone else’s. From this tender place, we begin a meditation on forgiving ourselves. In gradual steps, we bring light into our darkened places. By the end of the workshops, a shift toward hope is possible. It happens when we learn to retell our own story with acceptance of our own and each other’s humanity. Forgiveness opens a door.

We can choose to forgive not because we ought to, but because it helps us heal.

Forgiveness is a choice that allows us to heal from past hurts that diminish our lives and effect our health and well-being.

 The focus of the two-part workshop “Finding Forgiveness: Healing After the Loss of a Parent” is to help adult children experience forgiveness as an on-going process, even after death. Learning to forgive our parents and ourselves opens positive possibilities.

During the workshop, you will experience a forgiveness process through a blend of meditation, discussion, journaling, brief exercises and gentle movement to guide you toward a softened heart and healing. This workshop is for anyone who has been hurt, but has not yet healed.

Learning to forgive our parents and ourselves opens positive possibilities. Thursday, May 13 & 20, 7:00-8:30pm. 

MARA ALPER is a teacher, media artist and writer. Her documentaries Stories No One Wants To Hear (1993) and Forgiveness: A Healing Documentary (2006) have reached world-wide audiences about healing past pain. She inadvertently learned about forgiveness because of her life circumstances and her unwillingness to let the past deflate her life energy any longer. Her award-winning documentaries and video art have screened nationally and internationally.  www.MaraAlper.com