Paying for Hospicare

Whether you’re planning ahead for the care of a loved one or for yourself, one of the most common and important questions is: “How, exactly, do we pay for hospice?” 

The short, uncomplicated answer is: if you have Medicare Part A and qualify for hospice, your Medicare benefits will fully cover the cost. 

The longer explanation is that when you enroll in hospice, Hospicare takes over most of your medical costs related to your terminal illness. That includes medical equipment, medications, nursing care, and support services. In a sense, your hospice provider becomes your insurance provider, handling the cost and responsibility for most of your care needs while you’re in our program. 

If you have private insurance or Medicaid, coverage for hospice services is often available as well, though the details can vary by plan. Our team is always available to help you check with your insurance and understand what is covered under your specific situation. 

It’s also important for patients and family caregivers to understand the difference between discomfort related to the progression of a terminal illness and a true medical emergency. Sometimes, such as after a slip-and-fall accident or a severe burn, the need for urgent care is obvious. Other times, it’s less clear. That’s why hospice providers work closely with families to help them recognize typical symptoms and know when to reach out. If there’s ever any question, we always recommend calling your Hospicare care team first — we can help assess the situation and advise whether an in-home visit or, when truly necessary, a trip to the hospital is the right next step. 

For patients staying at the Nina K. Miller Residence on King Road in Ithaca, it’s important to know that room and board costs are not covered by Medicare hospice benefits. However, Medicaid sometimes helps cover the cost (which is $400 per night), depending on your coverage. If insurance won’t cover it and your family cannot afford the cost, Hospicare offers a sliding scale fee — and we never turn anyone away because of their financial situation. 

 

While most hospice-related care is covered, you may still encounter some out-of-pocket expenses. These can include things like room and board at a nursing facility, certain non-covered medications, or personal care items. Our team will help you understand any potential costs upfront so there are no surprises. 

It’s also important to know that once you are on hospice, treatments intended to cure your illness are no longer covered. That means, for example, that chemotherapy or radiation aimed at stopping cancer’s growth would no longer be included. However, medications and treatments that manage pain, ease symptoms, and improve comfort are always part of your care. 

We understand that financial concerns can feel overwhelming during an already difficult time. Please know that our Hospicare team is here to walk you through your specific situation, answer any questions about coverage or billing, and help you access financial assistance if needed. 

At Hospicare, we believe that everyone deserves compassionate care — no matter their financial situation. Please don’t hesitate to reach out. We’re here to help. 

Keeping Memories Of Loved Ones Alive in Daily Life

When a loved one dies, our memories of them can provide comfort, give us a way to process our grief, and continue the feeling of connection with them, all while allowing us to continue to honor their lives. 

 

Over the last several weeks, we asked several community members and Hospicare staff to share how they keep memories of their loved ones alive. 

I lost my mom 18 years ago but have so many memories both from my childhood and as an adultMy 10-year-old daughter didn’t get to know her, but I share lotsSometimes when baking or doing a craft project with my daughter Andie, I’ll look to the heavens to thank Mom for what she taught me and share what we’re doingIt reminds me of working with her in my childhood. 

Bob Haight, CEO and President, Cortland County Chamber of Commerce 

This year we did a ritual in February on Mom’s death day where I invited my sister and her grown sons and my father over for a meal and an evening. We set up an altar for Mom and decorated it with flowers together. Then we sat around it and wrote letters to her. Those who wanted to share their letters read them out loud, the rest kept them. It was so moving! I left the altar for two weeks and then put the flowers and any loose petals in the creek. I wanted her to see little blossoms everywhere, saying hello.” 

 

Rebecca Barry, Trumansburg, author of two books and the Substack newsletter Out of My Mind 

 

I keep mementos of lost loved ones. One or two physical objects I can feel, hold, and imagine them holding. It keeps their memory in a tangible way. A baseball, a pan for baking brownies… 

Zach Lewis, Hospicare Residence Nurse 

I try to remember people with sentimental items, like my grandmother’s rosary and my grandfather’s old shirts, which were turned into pillows. I also try to remember them by living my life by the values they imparted in me, as a way to honor their memories and the lives they led. 

Robert Cantelmo, Mayor, City of Ithaca 

rcantelmo

It’s a difficult question. When I started thinking about it, I thought, How do you put into words something that is a sensation, something that is totally spiritual and part of one’s physique, character, one’s way of looking at one’s self and the rest of the world? All of those loved ones are a part of who I am and my being. It’s like nature. I don’t even have to think about it. I look out the window and I know, that was made. My maker is my being. There isn’t anything that happens that I feel he’s not there. 

I have a list of about 25 people, and I have a mass said on their birthday. All the prayers offered that day, they get the benefit of At the beginning of the year, I send my list to the church secretary, and she lets me know if there are any masses available on those birthdays. A cousin of mine passed away two months ago. She and her husband had four biological children and adopted seven others. She had a bad case of dementia that ravaged her. It was very sad. But she had been a very strong, powerful woman. When I went to the funeral, I got this idea: I need to have a mass said for Connie.” And I found out that the mass on Easter Sunday at 11:30 had not been spoken for. The resurrection! This is perfect for her. 

Jeannie Barnaba, one of Hospicare’s longest-serving volunteers 

Women Swimmin’ for Hospicare Sets a New Record

Thanks to the hard work of staff, the volunteer WS Planning Committee, and 100+ other volunteers, the 21st annual Women Swimmin’ went on without a hitch. 314 women swam across the lake on Saturday, August 10, accompanied by over 120 paddlers.

The fundraisers raised $650,000 from over 6,000 donors, breaking last year’s record of $647,000. The money raised is crucial because it helps pay salaries, maintain the building, and provide for our wonderful bereavement program and services. 

On Thursday, July 25th, the Founders’ Match doubled every online donation to Women Swimmin’. The surprise 1:1 match was generously supplied by an anonymous donor and four agency and event founders: former Executive Director Nina Miller, another instrumental founder of Hospicare and its Residence construction David Banfield, aka “the King of Women Swimmin'”, event founder Joan Brumberg and her husband David Brumberg, and event co-founder Ann Costello.

The total donated by 770 swimmer supporters that morning was $78.091, which when matched by the 1:1 Founders Match, totals $156,183.

Thank you to all who made the event a huge success! See you in 2025!

Meet this year’s Women Swimmin’ Artist

We are so grateful to Q Cassetti for designing this years t-shirt and poster for our 29th Women Swimmin’!

Q. Cassetti has many years of visual art experiences with illustration being the newest add to her fun. She has been privileged to work with a range of clients in mix of roles including corporate identity and branding, logo design, packaging, packaging systems, communications graphics, employee communications, illustration, product design, photography, signage, concept visualization and implementation.

Supporting her mission to raise the level of design, branding and packaging of local food producers and farmers in the Finger Lakes Region, Q. provides branding, design, and packaging systems to help market to bigger stores and to gain a brand presence.
“Women Swimmin’ personifies all of the wonderfulness that Ithaca embodies–from the event, to the community that surrounds and supports it to benefit a truly lovely place, Hospice. Why wouldn’t we all want to be involved?”

See more of Q’s work on her website qcassetti.com!

Volunteering from the Heart!

Meet, Xihang Wang, one of our amazing patient care volunteers. He has volunteered in the Residence since fall 2020. He has been a regular at the dinner shift for most of the time and this semester, is doing a lunch shift. Xihang shares this about his volunteering experience:

I wanted to sincerely thank you for all your help starting way back in fall of 2020. You taught me an incredible amount when I first trained to become a volunteer, and I significantly appreciate all the support you have provided me in the years ever since. Volunteering at Hospicare has changed my perspective on the purpose of medicine – I originally believed that medicine was solely about treating disease. Now, I understand that medicine is instead most fundamentally defined by the sense of kindness and compassion directed towards patients.

It was a humbling experience to see all the dedication displayed by the Hospicare staff and fellow volunteers as they cared for patients in the residence, and I hope to emphasize this sense of humanity in all that I do in the future. Looking back, I am extremely grateful to have had the privilege of volunteering at Hospicare. Thank you again for all that you, and Hospicare, do.

Xihang Wang

40th Anniversary Donor Luncheon

Photos by Casey Martin

This year marks our 40th Anniversary, and we continue to honor the past and work together for a sustainable future. Thank you to all those who attended the 40th Anniversary Donor Luncheon at Hotel Ithaca. It was truly a wonderful celebration. Please enjoy a few photos, by Casey Martin, from the event.

At the luncheon, Nina Miller, former Executive Director of Hospicare said “So here we are, 40 years later, honoring all that has brought us to this point.  I am profoundly grateful for all that this organization has meant in my life, providing me with the most wonderful professional experience I could have dreamed of, with friendships that have lasted for almost half my lifetime, with the knowledge that our work was important and humane and compassionate, and of course for the personal experience my family had at the most difficult moment in our lives”.

There will be more occasions to get together and celebrate coming up, with the 20th Women Swimmin’ in August and a community-wide celebration of Hospicare’s 40th in the fall. Thanks again to the entire Hospicare community for your continued enthusiasm and support, which continues to be critical to our ability to offer high-quality services to all who need them!


As Nina says “Look how far we’ve come.  No one has to face the end of life alone.”

Registration opens May 9th, 2023!

Our 20th Annual Women Swimmin’ is on Saturday, August 12, 2023!

Wow, the 20th Women Swimmin’ for Hospicare swim! 

Once again, we have lots of different ways to participate. Swim the lake, be a safety or escort paddler, volunteer, donate, or Go the Distance! YOU choose which is the best fit for you!

  • Lake Swimmer – The amazing 300+ women who swim from Bolton Point on the east shore of Cayuga Lake 1.2 miles to the Ithaca Yacht Club on the west shore, on Saturday, August 12th! 
  • Go the Distance – Set an activity or service goal in support of Hospicare. Between May 9 and August 12, anyone can participate by doing any activity in support of Hospicare. Whether you are walkin’, swimmin’ laps, knittin’, bikin’, pickin’ up trash for your fundraising activity, we are grateful for your support! 
  • Support Paddler – Experienced paddlers in canoes, kayaks, and stand-up paddleboards (SUPs) assist our swimmers by guiding, escorting, and cheering them on as they swim across the lake!
  • Volunteer – Help out our participants and attendees before, during, or after the event. 

Our Mission Statement 

Go the Distance and Women Swimmin’ for Hospicare is a fundraising event that supports the expert, compassionate care which Hospicare & Palliative Care Services brings to patients and their loved ones at any stage of a life-limiting illness and/or following a death. This event raises funds and provides information and education about the agency and its mission in a manner that is inclusive, fun, and consistent with Hospicare’s ideal of respect for all people.

Staying Alive Longer Thanks to Hospicare

Mary Ellen Carollo and Our Family’s Experience

By Frank Carollo 

My wife, Mary Ellen Carollo, was a resident in Hospicare from September 2014 until her death in May 2015.  Our family is convinced that the wonderful care she received there is what kept her alive for those nine months. 

Mary Ellen in her room at Hospciare with her son Matt and husband Frank.

Mary Ellen was diagnosed with an inoperable, terminal brain tumor in Fall 2013 when she was only 58 years old.  While she was being treated that first year, she was able to live at home.  But by the following year she was starting to decline and needed more round-the-clock care than our family could provide.   

We called Hospicare and were able to place her in one of the residential facility rooms for what everyone thought would be her final few days – but, thanks to the 24-hour attention the staff was able to provide for her, she rallied.   

Then, around the 2014 holidays, she started fading again… yet once more improved in the short term.  By Spring 2015 she began what turned out to be a final decline from which she could not recover, and one night she died peacefully in her sleep with one of her sisters, one of her brothers, our son and me by her side. 

Everyone in the family visited Mary Ellen at Hospicare, here with her niece and grandnephew.

During all that time in Hospicare, it became a second home for our entire family – her mother, her eight siblings and their spouses and children, my two siblings, and our son – along with numerous friends from throughout her life, co-workers from her long and illustrious career with IBM, colleagues from her various volunteer activities, and anyone who knew and, of course, loved her. 

We got to know and become friends with Hospicare’s medical and care-giving staff and the administrative team, as well as with Mary Ellen’s “neighbors” in the residence and their families, too.  We relaxed in the lounge, had drinks and snacks in the kitchen, played games in the living room, soothed our spirits with music (our son played piano, one of her brothers played banjo), held Mary Ellen’s retirement party from IBM, and celebrated Thanksgiving and Christmas of 2014.  Some of us even had “sleep overs” in her room a number of times. 

I lived in Ithaca at the time and went to see her at Hospicare almost every day. With Mary Ellen in Hospicare, I was able to go home for a break every night, and go to work most days, confident that she was getting excellent medical care and personal attention from the staff, as well as social interaction with that day’s visitors.  That respite was critical for me, and as certain as I am that being in Hospicare kept her alive, I’m equally sure that it kept me from cracking up myself. 

Naturally, we all became heartfelt and, if I may say so myself, generous supporters of Hospicare.  Our family contributed in a number of ways, such as helping the staff out in the kitchen or with wheelchairs for Mary Ellen and her fellow residents, donating for one of the paving stones in the walkway around the grounds, and even making a substantial financial gift for the renovation of the kitchen – now known as “Mary Ellen’s Corner” in her memory. 

Hospicare aide, Tina, next to the plaque naming the kitchen as Mary Ellen’s corner.

One of her brothers and his wife, who live in Ithaca, are regular participants in Hospicare’s annual “Women Swimmin’ ” fundraising initiative, and that brother still helps out from time to time with landscaping work on Hospicare’s grounds. 

After Mary Ellen died, we held a memorial service for her on the property, on what would have been her 60th birthday in August 2015.  Hospicare was very generous in letting us use the facilities free of charge, and the staff helped us a great deal in making arrangements and setting things up.  It was a wonderful and touching farewell in a setting that had come to mean so much for all of us. 

That summer and fall, I attended Hospicare’s grief counseling program for bereaved spouses.  Even though I had known I was not alone in losing the love of my life, commiserating with other survivors, under the guidance of Hospicare’s sympathetic and understanding grief counselor, was invaluable in helping me and the others cope with what for all of us was the biggest tragedy in our lives. 

But that was not the end of our connection.  We still show our continued support through annual donations, and I have included Hospicare in my own estate planning. 

Mary Ellen with her mom and sisters.

Having Mary Ellen at Hospicare helped make it bearable – or, to put it better, as bearable as possible – for us to confront the unbearable thought of her inevitable passing.  For her and for us, facing death before her time was utterly heartbreaking.  But doing it with the support of the caring people and the compassionate atmosphere we found at Hospicare helped make it an experience that, in spite of its sadness, we all treasure.  

Hospicare Patient Care Volunteer Training

Want to Make a Difference? Become a Hospice Volunteer!

Volunteers are an essential part of the hospice team; both in assisting our patients and families and in assisting our staff. Hospicare & Palliative Care Services is looking for:


• Volunteers to help assist our staff in the Ithaca office answering phones and greeting visitors
• Volunteers to assist patients with advanced illness and supporting their families, especially in Cortland County
• Volunteers to assist our patients in our Residence on King Road in Ithaca

The next volunteer training will be a hybrid of self-paced on-line training modules as well as meeting on Zoom with other attendees to discuss and learn more about hospice. The Zoom meetings are scheduled for 4 evenings; which trainees need to plan on attending all sessions. The dates are: 2/21/23, 2/28/23, 3/7/23, 3/14/23.

Each session is from 5:00pm – 8:00pm.Volunteers are thoroughly trained in the goals and philosophy of hospice and the compassionate care we offer our patients. Volunteers help provide our patients and families with respite, companionship, light housekeeping, assistance with errands and reading aloud, as well as provide support in our 6-bed Residence on King Road in Ithaca. We provide services in both Tompkins and Cortland Counties.

If you are interested in volunteering please visit our website: Hospicare.org to fill out an application. https://www.hospicare.org/volunteer-application/


Once your application is received the Manager of Volunteer Services, Wendy Yettru, will contact you to set up an interview. If you have any further questions, please contact Wendy Yettru at 607-272-0212.

Recovering Your Creative Spirit in Grief

by Brenna Fitzgerald writer, editor, coach, and host of Creative Recovery podcast

Grief is a process that may involve conflicting emotions and can often feel uncomfortable and confusing. It’s natural to want to close down, shut off, and stop this unpredictable flow, especially in a society that expects grieving to happen in a certain linear timeframe and pathologizes anything outside of that.

Brenna Fitzgerald

I recently listened to an interview with grieving expert David Kessler, author of Finding Meaning: The Sixth Stage of Grief. He talked about the desire grieving individuals may feel to make the grief smaller in some way and offered an insightful alternative perspective to this reaction. “Rather than make the grief smaller,” he said, “we need to make ourselves bigger. Grief is love, and we don’t want it to get smaller.” He calls for a transformation of the traumatic wound into the cherished wound.

Indeed, research on grief supports Kessler’s emphasize on the importance of making space for grieving in all its forms. In his book The Wild Edge of Sorrow, psychotherapist Francis Weller writes, “if we ignore the fire, our internal life feels cold and the grief in our container congeals. Offering our attention, affection, and love, on the other hand, feeds the fire, and the gradual work of transmuting grief into gold can commence.”

My own early struggles with depression and an eating disorder as a teenager offered a gateway into investigating grief. Of course, I didn’t know it at the time, so consumed by my own suffering and unprocessed loss. It was not until I had undergone years of therapy in various forms from cognitive therapy to meditation and mindfulness practices to restorative yoga and creative writing that a deeper understanding of my inner world awakened. I realized that my depression and eating disorder were manifestations of stuck energy—of grief—from having experienced trauma in my early years and not having had the tools to process it. I began to realize the importance of practices, and especially practices of creative expression, to help move the complex energies stirred by my losses.

As Weller writes, “we are a menagerie of moods, emotions, thoughts, and selves. For the most part, we keep the unsavory brothers and sisters on the outskirts of town. Practice, however, invites these voices into the mix, recognizing in them an essential element in our well-being. We are asked to welcome the weak and vulnerable parts of ourselves in times of grieving….” I love his perspective and the emphasis on practice as an invitation into such a compassionate view of our grief.

It is through this lens that I created my upcoming workshop “Recovering Your Creative Spirit in Grief.” Grief can cause you to feel stuck, uninspired, and unfulfilled. This impacts your ability to express conflicting emotions in creative ways. In this workshop we will explore the feeling of being stuck and how it affects our inner life and outer expression. Through written reflection, group discussion, mind-body practices, and intuitive collage I will guide participants into a deeper understanding of their own blocks. Together we will create a safe and supportive container for each person to begin the process of shifting from stuck to unstuck. My intention is to facilitate awareness of and curiosity around the needs and desires of your creative spirit and to share tools and practices to help you sustain a nourishing and fulfilling engagement in life well beyond the workshop.

David Kessler says that “each person’s grief is as unique as their fingerprint. But what everyone has in common is that no matter how they grieve, they share a need for their grief to be witnessed.” Research on grief conducted by Robert A. Neimeyer, a psychology professor at the University of Memphis and a clinician, points to this same insight of the need for connection in healing. Great strength, resiliency, and compassion emerge when we can be present to our own self-expression and the self-expression of others, whether in the form of sharing stories around a fire or making collage on zoom.

This workshop is an opportunity for us to come together in community and offer space for one another’s stuck energy to flow in creative ways. May the practices we play with help you connect to a much larger sense of yourself and the world—a self that can hold, in love, the pain of your loss. As one of my favorite writers and thinkers, Audre Lorde, says: “These places of possibility within ourselves are dark because they are ancient and hidden; they have survived and grown strong through darkness. Within these deep places, each one of us holds an incredible reserve of creativity and power, of unexamined and unrecorded emotion and feeling.” I look forward to sharing healing creative space with you at “Recovering your Creative Spirit in Grief” offered virtually through Hospicare on March 3, 2022, from 6:30-8:00 p.m. May we all exceed the limits of our own self-image and awaken to the expansive being within—our inner creator.

EVENT INFORMATION

Recovering Your Creative Spirit in Grief
March 03, 6:30 – 8:00 pm via Zoom

To participate in this event, REGISTER HERE by February 28th. 

To learn about other events offered by Hospicare & Palliative Care Services, visit the events calendar on our website.